Day 2 after Noahs "Big" seizure

It was a hectic day for me. Here it goes...
We saw the Neuro yesterday and we decided to take Noah off of Keppra his new seizure medication. His behavior is worsening and its becoming scary. Noah has been changing emotionally for a while now and some days it is more than I can handle. The last two days of drs. appts have been hectic, but Noah has been out of control. Bitting,hitting,pulling hair and throwing and of course this is all happening to me. In the Neuros office yesterday we could not really concentrate on what to do for Noah because he was acting out so bad. Its sad to say but Noah reminded me of what little Helen Keller must have been like when she was out of control. I was in tears. We decided to put Noah on Resperaol (sp) a antipsychotic drug to help with behavior. They use this drug for children that are Autistic or ADHD, the doctor said he was not saying that Noah was either of these two but than he did need some behavior control and this should help him. He said that we start him on a very low dose not what it would be if he was diagnosed with Autisim. So I was ok with this.
I spoke with his teacher this morning and she said she didnt want to tell me but Noah was really horrible in class yesterday. Throwing,pushing, bitting chairs. I told her about the new medication and she agreed that something had to be done.
We had a nice chat this morning. She told me the testing was done on Noah and she couldn't get over the fact of how smart Noah really is. She said she had to use a different testing form above his age group for him because he is so smart. She said that he is by far the smartest in her class even well above the role model students, but emotionally hes like a two year old. She believes it has to be medication because she sees emotionally disturbed children and they are always mad about something but Noah is happy all the time and then has these outburst. I told her that I think now is the time for a behavior plan to be put in place for Noah and she agreed. She said all of this was going to be discussed at the meeting.

I'm sad at this news, but I did know that it was coming. I am hoping that the new medication will help him to settle down some and focus.
Overall he's doing better physically. He seems to be getting over what happened at school the other day.
He is still coughing some but seems well.

My biggest Fear... is now a Reality... Day May 1, 2007

Today was Noahs first day back at school since his illness. He's still coughing but has been on antibiotics for 6 days and I watched him closely yesterday (monday) for anything weird going on but he was fine all day. We played with all his toys, he's back to eating and drinking normally we even took a drive last night to watch the sunset in the florida keys (it's breathtaking). SO, I felt pretty good this morning about sending him to school. He was actually happy to go back.I left him at about 8:25am and came home. At around 9am I recieved a call from his teacher, she said, Noah's acting strange. She said his PT had him outside and came back with him and said that he's not walking normally. She said he's not got good color and his eyes are all over the place. I asked, "have you dialed 911" and she said we are still monitoring him. I said, "I'll be right there" and hung up the phone. I now know I should have said call 911 and I will be right there.It normally takes 15 min. for me to get to his school and about 8 min. into my drive the teacher called me and said we are going to call 911. I said, what? She said we are calling 911 and that Noah definately looks bad he is turning pale all over with blue lips and not responding with eyes rolled into the back of his head.... I teared up... driving to school... all I could think of was that I was not there for him. She said that EMT's have been called. I got there and he was still unresponsive. Acting sort of out of it, very pale but his lips were getting some color into them. I said his name 3 or 4 times before he recognized who I was and said, "Mommy I go home". I almost lost it... I grabbed him and put him in a rocking chair with me. The EMT's arrived and took us to the hospital. Noah perked up on the ride to the hospital talking and doing normal things.When we arrived they lowered the stretcher to the floor and I stood Noah on the floor while I got off and he almost went completely backwards. I didn't understand that he had no balance at all. It was bad. He could not stand alone without assistance. I sat him down in a chair to pull out I.D. and information and he fell over forward and almost most hit the hard surface of the hospital floor.I was freaked out... and stressed out.. He gradually got better and they monitored him for a few hours and then eventually I got him to fall asleep something he desperately needed.They let us come home. We are to watch him closely tonight and follow up with doctors tomorrow. We increased his Keppra to one more dose. They truely believed that due to his being really sick last weekend that his seizure threshold was not where it should be and thats why he had a seizure like that.This is Noah's second seizure during the day. Most are always at night right before he sleeps.I know it really scared me, the teacher, DH, the principal and everyone including the children in Noah's class.I took Noah back to school right before they were all due to leave for the day so the students could see that he was alright just in case it scared anyone.Well... Sorry I've really not been around but I have had my hands full this week. I will be in touch.Candi --------------------
"The Expert in anything was once a Beginner" - Unknown"You don't have to be in the lead if you have the heart to come from behind" - Unknown